tag:blogger.com,1999:blog-3398118423243126815.post8182104992671039777..comments2023-11-05T03:50:44.249-08:00Comments on Delinda Mccann: Realistic Outcomes.- Fetal Alcohol Spectrum DisordersDelindahttp://www.blogger.com/profile/04306627540325644838noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-3398118423243126815.post-87839844117195080412022-03-22T09:04:58.655-07:002022-03-22T09:04:58.655-07:00كهربائى منازل دبى
عامل بلاستر بدبى<a href="https://darenclean.com/au/electrician-houses-in-dubai/" rel="nofollow">كهربائى منازل دبى</a><br /><a href="https://darenclean.com/au/blaster-worker-in-dubai/" rel="nofollow">عامل بلاستر بدبى</a><br />mennahttps://www.blogger.com/profile/16000567273835334622noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-12108123157052642642012-10-17T08:06:23.093-07:002012-10-17T08:06:23.093-07:00I too believe we need a class action suit against ...I too believe we need a class action suit against the alcohol companies. Thy need tO pay for this. We need help. These kids<br />Need help<br /> I wish our son could live somewhere with real help. But jail is probably the best place right now that can keep him safe from himself. <br />I would help any way I could. I would be outside courthouse picketing or holding signs etc. anyone who does this. Let me know. Tell me what to do!amymwzhttps://www.blogger.com/profile/13630525632420135285noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-9530133979331726032012-10-04T09:39:13.489-07:002012-10-04T09:39:13.489-07:00someone needs to find a Lawyer who is willing to t...someone needs to find a Lawyer who is willing to take on a milestone case like this, and make it a class action suit from a large number of victims of FASD. Has one tried as of yet. I think once it's put into motion you get a lot of PR to promote the case and have picketers outside the court house. I believe it could be done, and if the judge rules against it, then keep filing appeals until they get sick of seeing you in court and all the citizens mad. If people could hear this from your perspective ((WHICH IS WRITTEN AND EXPRESSED VERY WELL) then maybe someone out there might take a chance on a case like this. <br />Just a suggestion.Lorihttps://www.blogger.com/profile/07598385861688875360noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-7077594231531154102012-09-27T09:37:41.030-07:002012-09-27T09:37:41.030-07:00Wonderful and informative article. You've be...Wonderful and informative article. You've been on the front lines of this issue, and I thank you for the information. I can certainly understand your frustration.Anonymoushttps://www.blogger.com/profile/03556243571224973844noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-79145326357906800982012-09-16T15:49:27.120-07:002012-09-16T15:49:27.120-07:00How can I find out more about FASD COMMUNITIES? I...How can I find out more about FASD COMMUNITIES? Is it a type of residential help? Parents banding together and sharing costs to hire "external brains" to help our adult children with FASD? twinsmomnoreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-25941902077179225692012-09-16T11:02:34.995-07:002012-09-16T11:02:34.995-07:00This is what I find to be the take-away statement ...This is what I find to be the take-away statement from Delinda's blog post:<br /><br />"Individuals with FASD cannot learn from their mistakes. They cannot connect rules to behavior. They just never develop adult level judgment and reasoning. Most individuals with FASD possess the sense for safety of a three year-old."<br /> <br />The cognitive deficits in the first three sentences are of ALL persons with an FASD, not of SOME or MANY or MOST of them.. It is not phrased with the conditional MAY not be able, but with CANNOT and NEVER.<br /><br />The way I interpret this information, the first three statements are the cause of the fourth statement: Because of what ALL persons affected by FASD cannot do and will never do, they cannot and will never be able to make decisions about their own safety any better than a three-year-old child.<br /><br />This information is so powerful! It can be used in applications for benefits and services for individuals from their state department of developmental disabilities. Defense attorneys and social workers can use it. It could be used to establish laws and policies protecting persons with FASD from being liable for criminal and civil "crimes. (It could also make them ineligible to vote, marry, own property, make medical decisions, drive, travel, etc.)<br /><br />I am concerned where ALL changes to MOST between the first three sentences and the last sentence.<br /><br />If I were a disability analyst, state bureaucrat or an assistant district attorney looking for a way to exclude a person with an FASD from receiving benefits or differential ("lenient") sentencing, that place between ALL and MOST is what I would pounce on and exploit with all the data I could find.<br /><br />Does anyone know what accounts for some persons being able to be less vulnerable (and thereby more responsible, more "culpable") than a three-year-old? Is there a level of vulnerability (eight, ten, 12, or whatever age) that NO person with FASD EVER exceeds?<br /><br />And if so, how do we know--where are the data? Is the "vulnerability age" in FASD directly linked to IQ? And only to IQ?<br /><br />And how do we determine vulnerability age for a person with an FASD who has an IQ in the Average range or higher? <br /><br />Is anyone doing research on this?<br />Valerie Lipownoreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-56654161710913063762012-09-16T06:10:28.740-07:002012-09-16T06:10:28.740-07:00There are a number of things happening to begin su...There are a number of things happening to begin supporting our young people. A national movement has begun called FASD COMMUNITIES and we need more participants - it is parent led. Also we are in year six of the SMART PRE-K program for 3-5 year old and now have level 1 and 2 published for preschools, head start, and families . Our results are showing children maintaining peer level to age 8 which is huge - Jodee KulpAnonymoushttps://www.blogger.com/profile/03920915649990015283noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-57487635628053075722012-09-16T06:09:39.735-07:002012-09-16T06:09:39.735-07:00There are a number of things happening to begin su...There are a number of things happening to begin supporting our young people. A national movement has begun called FASD COMMUNITIES and we need more participants - it is parent led. Also we are in year six of the SMART PRE-K program for 3-5 year old and now have level 1 and 2 published for preschools, head start, and families . Our results are showing children maintaining peer level to age 8 which is huge - Jodee KulpAnonymoushttps://www.blogger.com/profile/03920915649990015283noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-1842465734903940172012-09-15T21:24:29.285-07:002012-09-15T21:24:29.285-07:00Fetal Alcohol is a spectrum disorder, much like au...Fetal Alcohol is a spectrum disorder, much like autism, so yes, there is a whole variety of effects across a broad range. I didn't hear any "giving up" in Delinda's post - I did hear, and concur with the difficulty in getting folks to understand that this is lifelong - it's not "like all teens" and persons with FASD need more than most are willing to acknowledge in terms of lifelong help.<br /><br />What is also true of FASD, that is not, I believe - correct me if I'm wrong - is that about 90% of folks with FASD also have a co-existing mental illness of some sort, which muddies up the waters quite a bit. We have 2 adopted children, siblings, who are on the FASD spectrum, and because executive functioning is so screwy in these kids, helping them grow up and understand the world is very different from many of those with autism. < As an aside, we didn't know until our son was 12, and in major trouble with school, law enforcement, and all the other possibilities, that our kids were on the FASD spectrum. Sure would have been nice to know before!><br /><br />There are similarities in how social skills, speech, and behavioral issues occur in both autism and FASD, but in my opinion, the huge difference is how damaged executive functioning is. Persons with FASD may be able to talk the talk, but translating what they "know" and can speak into action just doesn't happen because of the damage to the brain. <br /><br />Thanks, Delinda, for what I think is a courageous, and realistic look at the long term outcomes for those with FASD. Yes, some will be able to function more easily in the world, just as some with autism do. But many - most? just never get there. And it would be really nice to have some heroes out there speaking for the needs of the FASD community as there are with autism, diabetes, and other illnesses.<br /><br />Joni StonekingJonihttps://www.blogger.com/profile/12536600916939072208noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-30622132816675125842012-09-15T16:02:43.305-07:002012-09-15T16:02:43.305-07:00Right I do understand about the "missing chun...Right I do understand about the "missing chunks of brain". I wasn't answering as someone on the outside, but as someone with TWO children with FASD. Thanks. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-1171093446051081682012-09-15T13:31:52.195-07:002012-09-15T13:31:52.195-07:00Very true Sandy. This disorder is very individual...Very true Sandy. This disorder is very individual. All we can do is share our experiences and what has worked for us in the hope that it will also work for someone else. It is trial and error but I am sure there are some gems in every Parents FASD story.. Claire (NZ)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-33759288097640573432012-09-15T13:28:38.123-07:002012-09-15T13:28:38.123-07:00Hi Amy. We also adopted our son from Russia. He ...Hi Amy. We also adopted our son from Russia. He is now 15 and we have spent the last 3 years patching up the holes in the walls throughout our house. He has been diagnosed ARND (with co-morbid ADHD) about a year ago. We have altered the way we parent him and so far we have had good results. Basically we have reduced all the stress in his life. He does just part days at school and if we see him becoming anxious then we don't send him to school. We have got him involved in a variety of activities to give him some positive life experiences. The best so far is the work he is doing to help the elderly (a weekly exercise class for the over 80's!) He loves it and it gives him a real confidence boost that I doubt he has ever received through a day at school. Man it is hard work though so I feel for you. Search for some respite so that you can take a deep breath before making any final decisions. Sending my love. Claire (NZ)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-47856610134889133552012-09-15T12:42:11.242-07:002012-09-15T12:42:11.242-07:00Regarding the responses you've received: I sus...Regarding the responses you've received: I suspect that like autism and other disorders, the severity differs with each individual. I doubt if a blanket statement regarding treatment can be applied to all. I salute parents who raise FASD children with love, patience, and understanding. I'm not sure I'd be able to do that.Sandra Nachlingerhttps://www.blogger.com/profile/16906884446237370105noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-33034942946286868172012-09-15T12:39:28.463-07:002012-09-15T12:39:28.463-07:00You are facing a common problem. In my work as an...You are facing a common problem. In my work as an advocate I met many families who ended up with their sons in out of home placement, usually mandated by the courts. Some of the youth who spent several years in placement now have reasonable relationships with their parents. You inspire me to write an article on creative out of home placement.<br /><br />Our kids adopted from other countries have so many issues in addition to the prenatal exposure to alcohol. Unknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-83296139912197860042012-09-15T12:34:36.346-07:002012-09-15T12:34:36.346-07:00Often the damage is done before a woman knows she ...Often the damage is done before a woman knows she is pregnant. My favorite prevention saying is, "Women of childbearing years who drink alcohol need to be on a reliable form of birth control." - DelindaUnknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-78551519380579877532012-09-15T06:15:06.945-07:002012-09-15T06:15:06.945-07:00I awoke to this blog in my inbox after talking wit...I awoke to this blog in my inbox after talking with my husband in bed for the last hour... We have 2 adopted kids from Russia and 2 bio kids. Our 13 y/o adopted son has full-blown FASD and is wreaking havoc in our home. The lies, the stealing, setting fires, breaking everything, sneaking out, sneaking within the house... With the daunting outlook and 3 girls to protect and our sanity waning, the thoughts of sending him somewhere came up this morning. Both sets of parents (my husband's and mine) have broached the subject as well. Our lives are chaotic and exhausting and it is affecting each of the 5 of us (in addition to him) in ways that my husband says are not "worth it. At what point do I look back and say, 'I knew this could happen. Why did I wait to do something?' " He is not a man of haste. This is not a decision we are flippantly coming upon. Who else has reached this place in raising adopted/FAS kids?? ~amyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-32519807994200896732012-09-14T23:10:04.225-07:002012-09-14T23:10:04.225-07:00Correct me if I am wrong but could this not be par...Correct me if I am wrong but could this not be partially avoided if doctors automatically tested pregnant patients throughout the pregnacy so it can be caught before it becomes a problem?Extraordinay Dreams of an Ireland Traveler by Mamiehttps://www.blogger.com/profile/05544525522910527784noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-69613843648681445182012-09-14T17:27:02.343-07:002012-09-14T17:27:02.343-07:00It is true that we cannot change the child or the ...It is true that we cannot change the child or the brain damage that they have suffered due to prenatal exposure to alcohol. All we can do as parents is change the environment to help them function even slightly more effectively and change ourselves - our expectations, our measures of success. Our kids with FASD need to feel useful and know how precious they are. My job as a mum is to encourage the positive stuff he can be good at, keeping his self-esteem intact is paramount. I must continue to hope that I can achieve that.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-71851714169456942992012-09-14T14:49:34.095-07:002012-09-14T14:49:34.095-07:00The broad brush goes both ways and that was my con...The broad brush goes both ways and that was my concern. The number of people who casually stated that "Oh with a little help they'll be fine" painted a horrifyingly optimistic picture of reality. <br /><br />My foster daughter has had therapies and counseling and support and dietary interventions. She still projects an air of vulnerability. Perverts still try to follow her home. People still take advantage of her because she cannot think on her feet. - DelindaUnknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-2492205686821955132012-09-14T14:41:34.643-07:002012-09-14T14:41:34.643-07:00MADD is still around, but may have gotten as far a...MADD is still around, but may have gotten as far as they can. Yes, many people with FASD do qualify for services from Developmental Disabilities. Being eligible for services is a huge factor influencing outcomes. - DelindaUnknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-39056199795234752022012-09-14T14:38:37.286-07:002012-09-14T14:38:37.286-07:00Oh yes, I would like help. My favorite place to g...Oh yes, I would like help. My favorite place to get funding would be from a 100% tax on alcohol earmarked for services for individuals with FASD. However that means fighting the liquor lobby. - DelindaUnknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-81848418865601794592012-09-14T14:36:40.201-07:002012-09-14T14:36:40.201-07:00Thank your for your answer. Most people with FASD...Thank your for your answer. Most people with FASD do receive an autism diagnosis. Therapies do help some problems related to the autistic behaviors. We haven't found a good therapy for the missing chunks of brain. - DelindaUnknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-33555460446166876622012-09-14T14:32:27.911-07:002012-09-14T14:32:27.911-07:00I respect your hope. I think we need to redefine ...I respect your hope. I think we need to redefine success. My foster daughter is active in her church. She has even started some new mission projects. This is her success.<br />Her danger is in interacting with the general population, which severely limits her ability to support herself. - Delinda<br /><br /> Unknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-57720635274432447362012-09-14T14:28:12.206-07:002012-09-14T14:28:12.206-07:00You bring up a common point with FASD--adoptions. ...You bring up a common point with FASD--adoptions. Adoptive parents seldom know they are getting a child with a lifelong disability. One reason for this is that the disability is not necessarily apparent at birth or even before a child starts school. It becomes more apparent and devastating with age. - DelindaUnknownhttps://www.blogger.com/profile/16752360633362842249noreply@blogger.comtag:blogger.com,1999:blog-3398118423243126815.post-75826987965519125002012-09-14T12:56:09.066-07:002012-09-14T12:56:09.066-07:00I'm sorry for your frustration with the FASD c...I'm sorry for your frustration with the FASD community, and those you've experienced in your personal relationships with those with FASD. <br /><br />As with the statement above about autism, the same was true about other disabilities like Down syndrome. Years ago people with Down syndrome were put away in institutions. Now, many people with this disability live and work in the community. There are many who are not able to, but not all are unable. They all have an extra chromosome, but some are able to function better than others. The same is true with FASD. That's why it's called a spectrum disorder. There is a great variation in what those with FASD can do. Accomodations must be made, and it helps if other people have understanding that it is a life-long disability. That said, there is a variety of affects, and a variety of results. To paint the entire FASD community with a broad brush is unfair to those who do live coping with alcohol disorders. I know of those with FASD who are a gifted writer and another who is a car mechanic. Not everyone will be able to do those things, but some are. Not could be, but ARE doing those things. For those who need life-long protection and advocacy, I want those things available for them. I am doing my part to spread awareness and understanding, and my prayer is that someday it will be more well-known, with better services available, just as has happened with Down syndrome and FASD. This diagnosis was only identified in the early 70s. We have a long way to go for both services and prevention.Karennoreply@blogger.com